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mindfullyevie

mindfullyevie
Loneliness & chronic illness (a thread)… - Becau Loneliness & chronic illness (a thread)… - Because of our lives can be so different to our peers, it can leave us feeling like the odd one out. - It can often be hard to relate to those around us, leaving us feeling alone in what we’re experiencing. - While we don’t want to always talk about our illness, it can be hard to avoid it when it impacts every area of our life. - The lack of support and help from medical professionals can leave us feeling isolated, dismissed and lost. - The first few years after diagnosis can be isolating and scary, and it’s made even harder by the friends we’ll lose during this period. 🌪 - Many social meet ups are usually in the evening past our ‘functioning hours’, making it harder to see people and make friends. 🛌 - Social events can cost money which we need to save to cover our medical expenses. - Meeting people can require travel which takes a toll on our bodies, so by the time we get there, we’ve already used up most of our energy. 🚊 Chronic illness can be a lonely and isolating experience. But please know, you are not alone. There is a community here who understands you, who sees you. Whatever you’re going through, someone else is going through it too. We see you. We are here with you. You are not alone in this. 💛👫
I shouldn’t have to prove to anyone that I’m s I shouldn’t have to prove to anyone that I’m sick - I should just be believed. ❤️ (And for what it’s worth, I believe you) xx
When you don’t feel enough, I hope you remember… 1. You are not a burden for having mental and/or physical limitations. 2. You never need to prove your worth to others. Not through achievements, not through success, not ever. 3. Success should be based on who you are, not what you achieve. 4. No one should make you feel not good enough, and that includes yourself. 5. You are not worth less just because your body can’t do more. 6. You are enough just by being here on this earth. 7. You are worthy of the love you give others. 8. You can aim to become a better you tomorrow but still feel enough today. 9. There are people in this world whose happiness has expanded simply because you exist. Sorry for my random absences, I’m still here and I still see you 💛 E xx
The many faces of chronic illness 💛 You can’t The many faces of chronic illness 💛 You can’t tell how someone is feeling based on their appearance. Be kind 😘
Notes and reminders on rest (a thread)… 💛 1. Notes and reminders on rest (a thread)… 💛 1. Rest because you want to get better, not because you’re sick. 2. Needing to rest does not mean you are failing; it means you are human. 3. Rest is not something you need to ‘earn’. 4. Just because you can keep running on zero doesn’t mean you should - burn out is not the answer. 🧘🏽‍♀️ 5. Sometimes, in order to feel more like yourself, and to show up to life more fully, rest is what you need. 6. Some people have no choice but to rest all day every day due to illness, and this can be frustrating and lonely. 🌍 7. ‘Rest’ looks different for every single person; what works for you might not work for someone else. 8. Even if some days all you can do is lie in bed and rest – that’s okay. You’re still doing a ‘thing’ even if it doesn’t always feel like it. 9. To be able to rest is a privilege not everyone has Xx
You say I’m invisible but can’t you see how mu You say I’m invisible but can’t you see how much my life has changed: no more school, no more work, no more socialising. You say I’m invisible but can’t you see how it affects my family: full-time carer, cancelled holidays, the worry in their eyes. You say I’m invisible but can’t you see the pain I’m in:
the leaving early,
the cancelled last-minute,
the you haven’t heard from me ‘cas I did a thing yesterday’.

You say I’m invisible;
that you can’t see me.

Come,
look closer.
You’ll see me.
You’ll see the pain.
You’ll see the life changed.
You’ll see the effort to look normal.
You’ll see the loneliness, grief, sadness and frustration.
You’ll see the ripple effect my illness has had on my life and those I love.

You’ll also see a fighter.
You’ll see someone trying so hard to get better.
You’ll see the daily acceptance, surrendering, and letting go.
You’ll see the extra love I’m pouring into my body and soul, reminding myself it’s going to be okay.
You’ll see the unrelenting resilience, courage and bravo it takes for me to get through each day.

Come and look around me too:
you’ll see all the other
warriors,
healers,
and just-trying-to-get-by-ers,
like me out there.

Why can’t you see me.
Why can’t you see me.
Why can’t you see me.

Do you see me now?
 ~
Page 51 of my book, ‘Everything is Always Changing.’ Available via my shop and Amazon worldwide - 50% off kindle edition in May and use code AWARENESS20 for 20% off the paperbacks via my shop mindfullyevie.com 📚🌍💛 xx
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