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mindfullyevie

mindfullyevie
Things those with chronic illness have heard at le Things those with chronic illness have heard at least one (and I wish we didn’t)… 1. But you don’t look sick! 2. I get tired too. 3. You just need to think more positively! 😶 4. I know someone who had that, they just did … and they’re fine now! 5. But I see you out and about all the time on social media! 6. Have you tried …? 🙅🏽‍♀️ 7. I don’t know how you live with it. 8. You’re such an inspiration to be so happy despite it. 9. You’re too young to be sick/everyone gets tired when they get older! 🌙 Anything you’d add to the list? xx
Truthfully, this one is still a work-in-progress f Truthfully, this one is still a work-in-progress for me. And it might always be. It’s something I consciously have to remind myself of every day - especially during harder times. And I’m not just referring to the love from others in this quote; I’m referring to the love from myself too. It can be so hard to not get frustrated and critical of yourself in moments of vulnerability. But those are the times when we should be leaning into love, gentleness, and patience, more so than ever. So not only do you deserve that love from others, you also deserve to receive that love from yourself too. ~ I am still worthy of love even when I’m sick, sad, and/or in pain. 🤍
Misconceptions about chronic illness (and the trut Misconceptions about chronic illness (and the truth behind them)… 1. You’re either really sick or fully better. (there is so much grey area in-between) 2. You have the same symptoms every day. (symptoms fluctuate daily and overtime) 📈 3. Chronic illness can be cured through effort. (no it really can’t) 4. You’re doing something wrong if you’re still ill. (you can do everything right and still be sick) 5. Chronic illness only impacts your health. (it impacts every area of your life) 🌍 6. Same diagnosis = same experience. (every chronic illness experience is unique) 7. It’s a one route treatment path. (it’s more like a maze) 8. Your mental health is the reason you’re not getting better (not getting better impacts your mental health) 🧠 9. It’s a quick fix (it’s one bloody long journey) Anything you’d add to the list? xx
Not being able to work due to illness doesn’t ju Not being able to work due to illness doesn’t just affect you financially. It affects you socially and mentally too. Not having co-workers or a group of people you see and talk to everyday. Not being able to contribute or be independent. Not being able to pursue your purpose and do what you love. A job is so much more than just a job. Please try and remember that next time you feel inclined to tell someone they’re ‘lucky’ not to have to work. 🤍
The Black & White View of Chronic Illness (that ne The Black & White View of Chronic Illness (that needs to change)… 1. *goes out*…you’re clearly not sick / *doesn’t leave the house*…you can’t be that sick. 2. *talks about illness*…focus on something else / *never talks about illness*…it doesn’t affect your life 🌪 3. *has a job*…must be fine, doesn’t need help/accessibility / *too sick to work*…needs to find a passion, drain on resources 4. *starts to improve*…wasn’t that sick in the first place / *doesn’t improve*…needs to try harder 5. *cancels last minute*…seen as unreliable / *attends once*…fine to go out all the time 🌈 6. *seeks outside help*…you should heal yourself, wants to be ill / *doesn’t seek help…doesn’t need the help 7. *looks sick*…need to make more effort / *doesn’t look sick*…can’t be as sick as you say you are 🙅🏽‍♀️ 8. *young and sick*…too young to be sick / *older and sick*…everyone gets tired/pain The black and white perspective of chronic illness can make many of us feel isolated, misunderstood and lonely. Please know you are not alone. Your illness and the complications that come with it are valid. I see you. 💫
So many of us are already trying so hard in life, So many of us are already trying so hard in life, which is why being told that you can “do more” is often heavy to hear as we’re already giving everything we have. I think we sometimes neglect to acknowledge people’s ongoing effort in the present moment over future potential. While it’s essential to have hope for the future - remembering how much things can change - I think some of us forget that we can’t just “achieve anything we set our mind to.” There are far too many things out of our control that get in the way. It’s not a matter of “effort equals progress” because if it were, then so many of us wouldn’t be in the situation we’re in. That isn’t to say we shouldn’t not try or that things can’t change. But it is to say that if you’re not where you want to be, the likelihood is its not your effort stopping you but a million factors out of your control. So here’s your reminder if you need it that I see you: I see your continuing effort. I see how hard you’re trying. And please know: your best is ALWAYS enough. 😘 ~ Please don’t tell me I can achieve anything I set my mind to: tell me what I’m doing Is enough. 🌟
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