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Everything is Always Changing
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mindfullyevie

Trying to describe what it’s like to live with c

Trying to describe what it’s like to live with chronic illness…

1. Chronic illness is never knowing how your body is going to feel each day.
2. Chronic illness is not being able to do all the things you want to do.
3. Chronic illness is constantly balancing what you want to do with what you can do.
4. Chronic illness is realising small wins are BIG wins and worth celebrating.
5. Chronic illness is resting even when you don’t want to.
6. Chronic illness is learning to live with grief, joy, fear, hope and frustration.
7. Chronic illness is not being able to relate to your peers and the lives they live.
8. Chronic illness is re-learning the definition of success and finding gratitude in the little things.
9. Chronic illness is being part of the most amazing and supportive online community. 👯‍♀️

I’m aware there could be more positive slides in this thread, and there could also be some more harder truths, but I hope this is a little balance of both. Love, E xx

The grief that comes with chronic illness is real,

The grief that comes with chronic illness is real, and it can be so heavy to carry 💛💛

This is forever one of my favourites quotes for un

This is forever one of my favourites quotes for understanding how to support someone with empathy rather than comparison.
Here’s a list of some empathic statements you could say instead of “it could be worse”:
- It sounds so hard.
- I’m so sorry you’re going through this.
- What can I do to help?
- Your pain is valid.
- I wish I could take some of your pain away.
- You are making sense.
- I get how you feel.
- It’s okay to feel like this.
- Even though things are hard now, and you might not be able to see it, it’s going to be okay one day too.
- Can I ask you some questions to understand you more?
- I wish I could help you more.
- I’m here for you.
- I support you.
- This sounds scary.
- I think you’re doing an amazing job, even though it might not feel like you are.
- Be kind to yourself.
- I can see how hard you’re trying.
- I know it’s hard, but please keep going, don’t give up.
- You’re not on your own in this, I am here.
- I’m not going anywhere.
- I love you just as much when you’re like this.
- You are doing so well.
🌸💛
Quotes: Saying someone can’t be sad because someone else might have it worse, is like saying someone can’t be happy because someone else might have it better (author of quote is unknown) xx

When your body can’t do more, it can be hard to

When your body can’t do more, it can be hard to feel ‘enough’ in the New Year when you’re surrounded by fitness goals, work goals, and ‘new me’ goals.
But this is your gentle reminder that you are already enough.
You don’t need to do anymore this New Year.
Just being here, just surviving, just breathing, just living, is enough.
YOU are enough.

Sending gentle hugs to everyone crashing from the festive period.
Sending gentle hugs to everyone feeling the post holiday/January blues.
Sending gentle hugs to everyone who wants to do more this New Year but can’t.

Because in those dark moments when you’re bombarded with messages to do more, to feel better, to create/work/run more, please remember:
“I am not worth less just because my body can’t do more” ❤️
~
(The quote is taken from page 99 of my book, ‘Everything is Always Changing.’ Available via my shop and Amazon worldwide 📚🌍 xx)

May you never forget how far you have come. May yo

May you never forget how far you have come.
May you never discredit your progress or growth.
May you never compare your year or journey with anyone else’s.
May you never give up hope that next year will be better.
May you never stop dreaming and believing that those dreams can, and will come true.
May you never feel disheartened that you are not as far along as you hoped.
May you never feel you are stuck; like nothing is changing.
May you never stop practising gratitude, letting go, and acceptance.
And may you never stop pursuing peace, hope, and joy in the little things.

Because despite everything that happened this year, you still made it through another year, and I’m so proud of you ✨💛 xx

The Reality of Living With Chronic Illness at Chri

The Reality of Living With Chronic Illness at Christmas…
1. Christmas is a time off work for most people, but for those with chronic illness, there is no “time off” from being ill. 🔄
2. Most people with chronic illness won’t be able to keep up with those around them during the holidays, and that constant awareness that your body is limited can be really hard.
3. The holiday season is a time when old friends get together, but for those with chronic illness, it can be a stark reminder how different your life is. 🏞
4. For some, medical gaslighting can come from family and friends, and it can be hard to be around those people at Christmas.
5. Christmas can be a time remembering all the things you can’t do, and that grief can be heavy to carry. 🌪
6. Even though it’s Christmas, those with chronic illness will still have to plan in rest periods and days off to cope. And even then, it’s usually not enough.
7. Most people with chronic illness have specific dietary requirements, and the festive food can be another thing we can’t join in with and have to plan out in advance. 📝
8. For a lot of people with chronic illness, no matter how hard they try or how little they do in comparison to those around them, they’ll still have huge payback and spend most of January recovering. 😴

The holiday season can be a hard time for those with chronic illness, with extra grief, loneliness, and flare in symptoms. But please remember, you are not alone. 👭 When you’re resting in your room, there are people resting with you in spirit. When you feel lonely, there are people out there who understand exactly what you’re going through. I see you. I’m here with you. You are not alone. ❤️❤️

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