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Mindfully Evie
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Archives

Most Recent Posts

  • 14 Ways I’ve Changed My Language to be More Inclusive
    In The Blog
    June 12, 2020
  • Small (Huge) Improvements – Health Update!!
    In Mini-Posts
    June 8, 2020
  • My Top 10 Favourite Around the World Memoir Books – Education Series 4/4
    In The Blog
    June 4, 2020
  • My Top 10 Favourite LGBTQ+ Books – Education Series 3/4
    In The Blog
    June 4, 2020

mindfullyevie
I was so honoured that my book, “Within These Fo I was so honoured that my book, “Within These Four Walls”, got featured in the May Spoonie Box. And I’m even luckier to have been gifted the June Spoonie Box in exchange for telling all you lovely people about it. “Spoonie box” (@spoonie_box) is a wonderful little business run by the lovely Kristina. The boxes are uplifting subscription boxes designed for spoonies and chronically ill people in mind. 👭 It’s a monthly subscription service, but you can also get one as a gift/one-off. ~ The thing I love most about Spoonie Box is not only do you get to support Kristina - who is a living spoonie running a business alongside her illness - but all the other items in the box come from independent, often one person businesses, some of whom are chronically ill too (like me and my book). So it’s the most wonderful way to support a bunch of really small businesses from people, some of whom are defying the odds to have a business in the first place! Any business, no matter how big or small, gives people purpose, and so it’s lovely to support that purpose and dream (especially Kristina’s because she is so amazing). 🤗 And this doesn’t even include the fact that receiving the box, or sending someone one, brings a huge amount of joy and happiness! ~ If you’re struggling to know how to support a chronically ill person, this is honestly the perfect thing to send them. And if you’re a spoonie yourself, this is the perfect way to treat yourself. Each monthly box has different goodies so you will always get something different! You can find out more if you go to their website “www.spoonie-box.com” or checking out her account @spoonie_box. Be quick if you want to order one though - they sell out SO fast each month. Thank you Kristina for both including my book in the May box and gifting me the June one 📦❤️ xx
I’ve moved on from seeking validation and approv I’ve moved on from seeking validation and approval to seeking growth and inner peace. 🧘🏽‍♀️🌱 It’s sort of crazy to think of all the things I used to worry about all those years ago… What other people thought, grade scores, winning approval, seeking validation, gaining a list of physical achievements to prove my worth. And nearly all of these things are: 1. Out of my control 2. Not important in the grand scheme of things. Now I understand what’s important… Growth, self-compassion, inner peace, my approval of myself, kindness, happiness. These are the things that truly matter when it comes down to it, and I know I’ll always be grateful for learning this lesson. So here’s to moving on from the past of seeking validation and approval, to the present and future moments of seeking growth and inner peace ✨ xx
Oh hello, just casually letting you know I left th Oh hello, just casually letting you know I left the house for the SECOND time since 2017 😁🎉 My heart’s still so full and the joy I’ve been feeling these past few weeks sort of feels dreamlike - like I can’t really grasp it’s happening. As you might recall my first outing was just before lockdown back in March, and today we did the exact same outing (driving to the local park down the road), and goodness, it was SO much easier this time around than last time!! Whilst lockdown hasn’t been good for a lot of people, I’m weirdly grateful for it as it’s meant these past 3 months I’ve been forced to work on improving the really little things first, like getting more independence back around the house and being downstairs a little longer. If lockdown hadn’t happened, I’d probably have been leaping from bedbound to leaving the house for 10 minutes, and then back to being bedbound for the rest of the week. Now that I’ve re-done what I did exactly 3 months ago, I can see how much better it’s been to build up little by little and work on getting my body stronger first before tackling going out - even if it is just to the park down the road! So for me, there really has been a silver lining and lesson in it all which I needed to learn: climb the ladder one rung at a time from the ground up - don’t jump back and forth between the bottom and top step 💫 So thank you lockdown for making me do that !! 😂 p.s. shoutout to my pooch Saffy who turned 11 this week, I don’t know how I would have coped all these years housebound and bedbound without her ❤️ xx
Our world is changing, and our language needs to c Our world is changing, and our language needs to change with it. Language can exclude people, cut people out, and cut people down. We need to start having more open conversations about ways we can use our language to include everyone and to use it sensitively as to not discriminate. This is why I’ve written a new blog post - “14 Ways I’ve Changed My Language to be More Inclusive”. 💭 I am by no means an expert, but I have been consciously changing my language both internally and externally as well as changing my automatic assumptions. I’m surprised at how far I’ve come in only two years, and I think that shows it doesn’t take much effort or time to change the way we think and speak in a way that is more appropriate, kind, and sensitive. 💛 ~ Of course, it is worth remembering that both our world and language are constantly changing, and what is okay today we might realise tomorrow or in a few years is no longer acceptable, so we need to be open to always changing and adjusting to the world around us. Furthermore, there is never a one-size-fits-all approach – what’s acceptable for one person may not be for another. While this makes it a lot more complicated and may even make you think, what’s the point of changing my language and thinking in the first place? – I say it’s a learning experience. Trying is much better than not trying. 🤝 Listening and educating yourself is better than giving up because it’s too complicated. ~ The list is simply all the things I could think of but I’m sure there are so many more that I might have missed (please do let me know if I have). As both a woman and someone who lives with a disability, I’ve come to learn how language can be hurtful, degrading, and excluding. But I know there are people out there who have it a lot times worse than me, which is why I’m making the effort to make sure I don’t make anyone feel the way some people have made me feel with their language. 🌍 I hope the post might spark open conversations with the people around you, as well as yourself, about how you use your language too and if and what might need to change. ~ Link in bio to read it or head over to mindfullyevie.com. Love E xx
These past 3 months have been everything and more These past 3 months have been everything and more ☺️🌟 • Ever since I got glandular fever, aged 16, I’ve seen nothing but a steady decline in my health to the point of being left bedbound last year. But these past 3 months have been the first time ever, in these 7 years, that I’ve had such a solid block of improvement - no relapses, no flares, just a little bit up, up and up. • In these months I’ve achieved: - I no longer live in the dark; I finally opened my blinds in my bedroom and I’ve stopped wearing my sunglasses - something I’ve had to wear 24/7 for the past year. I can even go outside into the sunshine 🌞 - I no longer spend 24 hours in bed, I go downstairs EVERY DAY and spend a good 4-5 hours downstairs before heading back up to bed before dinner. - Noise sensitivity has also improved drastically: I can sit in a room with more than one person talking, and my parents can make noise around the house without my body going into overdrive. - I can FaceTime family/friends for an hour or two, once or twice a week. Now this is undoubtedly the happiest improvement! I literally haven’t seen my friends faces in four years, and now I’m talking to them nearly every week 🤗 - A few times a week I can sit upright in a chair for an hour or two - so crazy to do something so normal like sit in an actual chair 👩🏽‍💻 #whodis - Instead of relying on my parents to wash my hair for me once a month, I can now wash my own hair, twice a month!!! I still have to use a stool but it’s so nice to have this small nugget of independence back. • Of course, saying all of this out loud is scary, which is why I’ve been quiet about it until now. The fragility of where I’m at is all too real and I find it easier not to think about it too much so I don’t overthink anything. But I also want to share my achievements with you and hold onto these moments as I’ve never experienced a solid improvement block like this before ♥️ • p.s. I know people will ask me what I think has helped, and I’m going to be honest and say I don’t feel comfortable talking about my treatment or healing as it’s so individual, and it’s not just one thing but literally a million things stacked on top of each other ✨ xx
I’m all too aware that many of us in the chronic I’m all too aware that many of us in the chronic illness community struggle with fatigue, both mentally and physically, and going out and searching for our own resources to educate ourselves on important topics and matters is draining. As someone with the ability to read and write, I wanted to help save some energy for those chronically ill, as well as simply share books I have found helpful these past few years in terms of educating myself and gaining insight and information. 🌍 ~ I have written 4 blog posts as part of a book education series, covering four different areas (although they all overlap). They include - Black Lives Matter, Feminism, LGBTQ+, and Around The World Memoir books. Each blog post includes my 10 favourite books on that topic, and to help those with chronic illness, I have included an “easy, moderate, or hard” reading rating scale to help you know what is easiest or hardest on your brain fog and fatigue, as well as including the page count for each book so you get a good idea of how much you’re taking on. I’ve also added which books are available as audiobooks, as I know that is an easier option for some. 🎧 ~ So many people in the chronic illness community will want to educate themselves but will also feel overwhelmed, and maybe even guilty because their illness does not allow them the energy or strength to read heavy or in-depth books or articles. 📚 I hope these blog posts ease the weight a little bit for you by saving a few chronically ill people some energy and it helps you work out what books might be more manageable for you (as that’s the intention and purpose behind it). It might also help anyone looking for resources but are unsure where to start. ~ I am by no means an expert at all, and I will definitely get things wrong, so if you see something that doesn’t sit right with you, then please do speak up: I want to learn and grow as much as you. I also have a long way to go, and I’m aware that educating myself is not a one-way route; it is a never-ending road and minefield, but I must take responsibility to educate myself and to not stop doing that to the best of my ability.♥️♥️ ~ Link in bio to read them. Love and light, E xx
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