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Most Recent Posts

  • From 5% to 30% today – Health Update
    In Mini-Posts
    September 15, 2020
  • Family and Illness
    In Mini-Posts
    September 10, 2020
  • A Part of My Life is Frozen in Time
    In Mini-Posts
    August 10, 2020
  • Whatever You’re Feeling is Okay
    In Mini-Posts
    July 15, 2020

mindfullyevie
I think there’s a lot of pressure in our western I think there’s a lot of pressure in our western society to “find our purpose”, and while that is great for some, for a lot of us, we don’t know what our purpose is. And without a purpose, it can often feel like our life is therefore meaningless or less important than those who feel they’ve found theirs. 💫 I know I don’t feel like I have a purpose in life, but instead, maybe just existing is my purpose, and maybe it’s your purpose too. Maybe it’s just being here, on this earth. Because even if you’re confined between four walls, or you’re not off saving the planet, or trying to change the world, you being here is still enough. Just breathing, just existing, is purposeful enough. ~ So always remember: You matter. You belong. The earth wouldn’t be the same if you weren’t here. Because you don’t need a purpose to feel you be should be here on this earth. You being here is purposeful enough. 💭🌍
What a difference a year makes, from functioning a What a difference a year makes, from functioning at 5% to 30% today 🌟🌈 ~ This time last year I was completely bedbound, and I didn’t end up leaving my bedroom for 365 days. During that time, every meal and need was bought to me. I didn’t make a single cup of tea myself. Showers were a thing of the past. My parents washed my hair for me once a month over the bath. I lived in constant darkness and silence. 😴 I saw my best friend once in that year for 15 minutes in bed. I had a migraine every day. I wore sun glasses 24/7. All I did was literally just lay in the dark and rest all day. The photo on the left isn’t even an accurate photo as we opened the curtains and I took off my sunnies very briefly to take the picture! ~ Today, I’m going downstairs EVERY DAY and staying down there for the whole day. I’m getting my own food, my own cups of tea. ☕️ I’m able to sit at a table and write. I can shower every third day, and wash my own hair fortnightly (stool in the shower to help). I’m baking birthday cakes for people. 🎂 I’ve seen all five of my best friends for the first time in over three years (they came to my garden)! I’m FaceTiming and chatting to people a few times a week. I’ve gone on a handful of small adventures, like the one above, driving to local open spaces, sitting down and people watching. 👭 ~ I never, ever thought I’d post this. I never thought I would finally be the one telling others I’ve improved. I knew it would happen one day, but I never quite expected it to happen so quickly. ~ HOPE is real. RECOVERY is real. Don’t ever give up. I know I have a long way to go, but right now I’m just going to be appreciating how insanely far I have come this year. 30% may still not sound like a lot to some people, but others will know it is everything to me. This. Is. Happening. After 7 long years of decline, I am finally healing. ❤️❤️❤️
You are going to make it. Wherever you’re trying You are going to make it. Wherever you’re trying to reach: you will get there. ✨💛
Something that I think is overlooked with illness Something that I think is overlooked with illness is how much it affects your family. It wasn’t just my friends that I couldn’t see for over 3 years: it was my family too. It was my grandparents, my brother, my sister, and to an extent, my parents. Even though they might live with me, or know me better than anyone, my illness doesn’t give them a free pass. When my siblings came home, I wasn’t able to sit in a room with everyone because it was too much noise. Instead, I would have one visitor at a time in my room - quietly talking on a timer as more than 10/15 minutes was too much for my body. Or when my grandparents drove down to see me, 20 minutes was still the max, before my mum got everyone out of the house and off to lunch so I could quietly recover. Even despite all the precautions we took, I still crashed every time I saw a family member, and that was so incredibly heartbreaking. ~ Heartbreaking because I couldn’t spend time with the people I love. Heartbreaking because for nearly 4 years, I missed every dinner, every walk, every outing, every photo, every call, every FaceTime. Heartbreaking because I could only hear family updates through my mum as she passed the information on in manageable chunks. The reason I want to give awareness to this is I think it’s easy to assume even if someone is ill, or has severe fatigue, that doesn’t apply to their family or household. I would get friends asking if they could see me, not realising I can only see one person a month, and that slot was saved for family. Not realising holidays or events in our house weren’t social times for us: they were how many things can we plan *outside* the house so Evie can rest. Not realising it was a continuous “you can’t come to our house because our daughter/my sister is too ill”. ~ Of course, there is a light at the end of this tunnel. I just had the most amazing few days with my brother home - chatting away and catching up on what felt like years. Sadly I can’t tell you more about it cas my word limit is up, but for the first time in nearly 4 years, I finally felt like I could be a sister again. And maybe soon, I can move on from being the sick child too, and just be Evie ❤️
There is no such thing as the “right path”: th There is no such thing as the “right path”: there is only your path. 🏞
SHOP OPEN + 1 YEAR BOOKIVERSARY = HUGE SALE !!! 🌈 📚🌟 To celebrate both the opening of my shop and my one year release of “Within These Four Walls” on September 18th, I’m having a HUGE sale for the next two weeks. 2 for 1 on the paperback baby, woohoo! Buy 1 book and I’ll give you another completely for freeeee! 🙈 This offer is only available through *MY SHOP/BLOG*. You won’t need to use any discount code or anything, just purchase one book like normal and I will automatically include the freebie with all orders. Countries I’ll ship to - UK, USA, and Germany 🌏 Signed edition is UK only though! The PDF/ebook version on my shop also has 50% off - only £3 - so if you would rather an electronic version than paperback, this one if for you! www.mindfullyevie.com (link in bio) ~ The kindle edition of my book on Amazon is also on sale, 50% off worldwide!!! Only £2.99/$3.99/€2.99 💛 ~ To conclude the sale: 2 for 1 on the paperback, offer through MY SHOP/BLOG only. 50% off the PDF/ebook version, also only through my shop. 50% off the kindle edition, worldwide on Amazon. Sale ends midnight 18th September. ENJOY!!! ☺️☺️☺️☺️
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