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Category: Mini-Posts

Living in Constant Fear of Overdoing it with M.E.

April 26, 2018 Evie Leave a comment

Fear comes hand in hand with M.E.. I live in constant fear of overdoing it. I’m always asking myself, “have…

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Posted in: All Posts, Chronic Illness, Mini-Posts

Tomorrow is a New Day

April 23, 2018 Evie Leave a comment

Tomorrow is not another day. Tomorrow is a new day. It is a chance to make new memories, new experiences,…

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Posted in: All Posts, Mindfulness, Mini-Posts

One Year Being Housebound – The Lessons I’ve Learnt

November 26, 2017 Evie Leave a comment

Today marks 1 year of being predominately housebound due to M.E.. Instead of feeling sad about it, today I’m celebrating…

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Posted in: All Posts, Chronic Illness, Mini-Posts

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Daily reminder to myself: I am not worth less jus Daily reminder to myself: I am not worth less just because my body can’t do more. I am not failing because I cannot keep up with the pace of the rest of the world. I am not less valuable because I can’t hold a normal job or have to rely on others for help. I am still worthy. I am still successful. I am still valuable. (and so are you) 💛💛
Things to say instead of “just stop thinking abo Things to say instead of “just stop thinking about it”… - I’m sorry things are so tough for you right now. - Would you like to talk about it? 🤝 - I’m here for you. - There’s no right way to deal with this. - You’re not failing if you’re still thinking about it. 😚 - You’re not alone. - It’s going to be okay. - I’m so proud of you. - *say nothing* - just listen. 💛💛
We’ve finally reached my 9th and last post for M We’ve finally reached my 9th and last post for May awareness month! If you’ve read even 1 out of the 9 I’ve posted over the last four weeks, it means a lot to me. I hope that maybe I’ve helped educate even one more person out there on ME/Lyme/chronic illness. Like classic me, I wanted to end on a high note and offer up a dose of hope and reminder. Keep believing. Sending so much love and light to all. Xx 💛💛 • No cure doesn’t mean no hope. Recovery is possible. 💫
The things you don’t see behind chronic illness. The things you don’t see behind chronic illness... 1. The guilt of cancelling last minute. 2. The enforced rest periods. 3. The scramble for an answer when a stranger asks, “What do you do for a living?” 4. The stares you have to endure when you use visible disability aids or blue badge parking spots. ♿️ 5. The fight for basic health care. 6. The excessive planning and pain meds organising just to do a thing. 7. The grey area between sick and not sick enough. 🌫 8. The anxiety of not being able to plan your future due to the unpredictability of your health. 9. The fear that this is forever. Anything you would add on the things you don’t see behind chronic illness? ❤️ xx #chronicillnessawareness
Society makes me feel less valuable because I live Society makes me feel less valuable because I live in a body that can’t do as much as my peers. I was 17 when my health forced me to drop out of school. I left with no A-levels, went to no university, hold no degree, no job, and for some reason, society deems me less valuable because of this. Some of the first questions people often ask upon meeting are: “What do you do for a living?” “What university did you go to?” “What’s your job?” While I know this small talk is natural in our society, it’s hard when you have no answers to these questions. It’s hard when you know success is decided on what’s on a piece of paper rather than what’s in your heart. I know not all of society is like this, and I’m so grateful for the people I have in my life who never make me feel less valuable than them.
But that also doesn’t take away the fact that I sadly often feel that way about myself, and I know a lot of that is what I’ve absorbed from society generally. I’m still unlearning these things. I’m still unlearning what success means. I’m still unlearning that working every night until midnight is less important than how I treat myself and others. I’m still unlearning that being disabled with no qualifications doesn’t mean I’m not clever, ambitious, or incapable of learning. But I know it’s going to be an ongoing, daily job of unlearning. I know that as I become part of society again, I’ll have to grapple with all these questions once again. And the truth is, I know that if I tell someone I don’t have a job or even A-levels, some people will immediately place me as “lower” to them. But I also know the harsh truth that if I then tell them I’m an author and have written a book, I’ll probably be placed back on the “successful” list. And I don’t want that. I don’t want to use my achievements to make others see me as worthy. I am just as valuable today even if I hadn’t written a book. I am just as valuable if all I had done up to this point was survive. And I know that those who are kind and deserving of my time will never make me feel any less valuable than them, ever. ❤️❤️ #chronicillnessawareness #disabilityawareness
What I wish those with chronic illness would remem What I wish those with chronic illness would remember… 1. Your illness is not your fault. 2. It’s not your duty to educate others on your illness. 3. Even if we all tried the same treatments and did the exact same things, we would still end up in different places because our bodies are all so different. 🏞 4. Always do what is best for you. It doesn’t have to make sense to anyone else. 5. You can do hard things, again, again, and again. 6. Just because you have no choice to live this way does not mean it isn’t brave. 7. You have a job. You’re a full-time healer. It might not pay anything, but it takes all the working hours and more. 8. If you start to recover yourself, you don’t hold responsibility for others recovery too. 🌟 9. You’re doing amazingly with the circumstances you’ve been given. Anything you would add on what you wish those with chronic illness would remember? 😌 xx #chronicillnessawareness
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