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Category: Mini-Posts

Book Education Series – Explained

June 3, 2020 Evie Leave a comment

I’m all too aware that many of us in the chronic illness community struggle with fatigue, both mentally and physically,…

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Evolving Soul

May 31, 2020 Evie Leave a comment

Others may look at you and see you in ways you do not wish to be defined. But this does…

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Me and My Book are Featured in a Podcast Episode!

May 12, 2020 Evie Leave a comment

Me and my book have only gone and got itself a podcast episode!! The incredible Hayley and Tom from Spoonie…

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Lyme Disease Awareness Month

May 3, 2020 Evie Leave a comment

Welcome to life with Chronic Lyme disease!This photo is the absolutely smallest insight into what it’s like to live with…

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You Don’t Lose the Good Things By Letting Go of Illness

April 7, 2020 Evie Leave a comment

I was scared that letting go of all my illness labels and identification meant I would have nothing to write…

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Most Recent Posts

  • My Top 10 Favourite Around the World Memoir Books – Education Series 4/4
    In The Blog
    June 4, 2020
  • My Top 10 Favourite LGBTQ+ Books – Education Series 3/4
    In The Blog
    June 4, 2020
  • My Top 10 Favourite Feminist Books – Education Series 2/4
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  • My Top 10 Favourite Black Lives Matter Books – Education Series 1/4
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    June 4, 2020

mindfullyevie
I’m all too aware that many of us in the chronic I’m all too aware that many of us in the chronic illness community struggle with fatigue, both mentally and physically, and going out and searching for our own resources to educate ourselves on important topics and matters is draining. As someone with the ability to read and write, I wanted to help save some energy for those chronically ill, as well as simply share books I have found helpful these past few years in terms of educating myself and gaining insight and information. 🌍 ~ I have written 4 blog posts as part of a book education series, covering four different areas (although they all overlap). They include - Black Lives Matter, Feminism, LGBTQ+, and Around The World Memoir books. Each blog post includes my 10 favourite books on that topic, and to help those with chronic illness, I have included an “easy, moderate, or hard” reading rating scale to help you know what is easiest or hardest on your brain fog and fatigue, as well as including the page count for each book so you get a good idea of how much you’re taking on. I’ve also added which books are available as audiobooks, as I know that is an easier option for some. 🎧 ~ So many people in the chronic illness community will want to educate themselves but will also feel overwhelmed, and maybe even guilty because their illness does not allow them the energy or strength to read heavy or in-depth books or articles. 📚 I hope these blog posts ease the weight a little bit for you by saving a few chronically ill people some energy and it helps you work out what books might be more manageable for you (as that’s the intention and purpose behind it). It might also help anyone looking for resources but are unsure where to start. ~ I am by no means an expert at all, and I will definitely get things wrong, so if you see something that doesn’t sit right with you, then please do speak up: I want to learn and grow as much as you. I also have a long way to go, and I’m aware that educating myself is not a one-way route; it is a never-ending road and minefield, but I must take responsibility to educate myself and to not stop doing that to the best of my ability.♥️♥️ ~ Link in bio to read them. Love and light, E xx
Others may look at you and see you in ways you do Others may look at you and see you in ways you do not wish to be defined. But this does not mean you therefore become only this one thing, this label they place on you. You are not meant to be bent into boxes and stacked into piles just because other people think it is easier to understand you this way. You were born to be free; to go beyond the boundaries anyone puts around you, and to be and grow into who you were meant to be. So stay free my darling, and let no one define who you are. You are an evolving soul, finding your way through the world, understanding what it means to be whole. ✨✈️🌎
One virus was all it took to change my life. One v One virus was all it took to change my life. One virus was all it took to flip the path I thought I had planned and to shove me on a completely different, unknown path. One virus was all it took to see my health slowly slip out of my hands until barely visible grains were left. One virus is all it can take to snatch the word “me” from your vocabulary and slip a dot into the middle of the word to create M.E and consequently, change your world entirely 🌍. And it can, and does, happen to anyone.
School children, teenagers, students, adults, parents. A whole population of people silently selected to never recover from viruses so many will get. But what are you left with at the end of that? A population of people who can join together like no other. A population of people all connecting through a single thread. Our voices come together like droplets of water seeking each other out, and standing side by side, we form a tsunami of love and support. A community built like no other 👭. I know one day our collective voice will be heard and we will finally get the awareness, treatment, and cure so so desperately needed. And I know it won’t be the result of one single voice, but the result of an army of voices, standing together in unity, simply asking to be heard. 💙 #MEawareness #findacure
Me and my book have only gone and got itself a pod Me and my book have only gone and got itself a podcast episode!! ☺️ The incredible Hayley and Tom from @spoonie_village have recently launched a podcast, and for the latest episode me and my book are featured in it. The podcast episode is beyond amazing and nothing short of incredible: I laughed, cried, and pretty much nodded my head in agreement to everything Hayley and Tom had to say. It is such a thought provoking and empowering listen: I cannot recommend it enough! 🌟 ~ Originally, they very kindly asked and was hoping to have me on as a guest speaker, but sadly due to my rubbish health it simply wasn’t something I was well enough to do. However, Hayley was incredible and felt such a connection with my book that they’ve gone ahead and done the episode without me; talking about Hayley’s time being housebound/bedbound and discussing why she relates to my writing so much. I managed to record a few of Hayley and Tom’s favourite pieces from my book, which are included in the Podcast episode, so I am physically a part of it in a small way! Essentially, the episode is like a book review, where Hayley talks about her experiences and mine, inspired by passages in my book. 📚 I’m still in awe at Hayley and Tom’s kindness and love for my book, especially at their being so understanding of not being able to join them on the episode but still wanting to go ahead and talk about me and my book anyway. So if you want to have a listen to the podcast episode (which I cannot recommend more), just click on the link in @spoonie_village bio, visit spoonievillage.com and go to the podcast section, or search “spoonie village” in Spotify, Apple or google podcasts. ~ Also just a reminder: If you buy my book this week, 100% of the profits will go to charity in honour of M.E awareness week and Lyme disease awareness month. Offer ends midnight Sunday 💙💚 ~ Lots of love, E xx
In honour of both M.E awareness week and Lyme Dise In honour of both M.E awareness week and Lyme Disease awareness month, I will be donating 100% of the profits from my book, “Within These Four Walls”, to charity this week. This offer will stand for the entire week, so you have until midnight on Sunday to purchase my book with the knowledge that you not only get my book, but you also get to give money to some amazing charities. I hope together we can help raise money for causes so close to my heart. A cure for these illnesses is possible, but the biggest thing that stands in the way of a cure is money. We need money for trials, to fund biomedical research, and to set up programmes and projects to educate consultants. Rather than simply asking you guys to donate, I’m happy I’ve found a way for you to both donate and for me to give you something back in return to say thank you for your support. So if you’ve been wanting to purchase my book, now would be the perfect time 💛 No need for a discount code or anything, with every purchase, I’ll make sure all that money goes to the two M.E and Lyme charities I’ve chosen equally 🌈☺️
“Have you tried this?” “Maybe you just need “Have you tried this?” “Maybe you just need to try a bit harder.” “Are you doing anything to help yourself get better?” ~ Some people often mistakenly think that because I am still very sick, I’m not actually doing anything to get better. This idea that I am just sat in my bed twiddling my thumbs waiting for healing to occur completely and utterly baffles me. 💭 But at the same time, I do understand the misconception that effort equals progress, so surely if I’m trying really hard to get better, I should be getting better, right? But chronic illness simply doesn’t work this way. A lot of it can be about the opposite of effort, especially when it comes to M.E. 🌱 Surrendering to how your body is feeling, resting when you feel tired, listening to your needs and not fighting against how you feel. But of course, even with all the surrendering and listening to your body’s needs, there is still SOOOOO much effort going on in the background. 🙌🏼 We are all working so incredibly hard to get better: endless research, experimenting, resting, healing techniques, herbs/supplements/medications/injections etc… Some of us get lucky and find the things that help us early on, while a lot of us take a lot longer to get there. ✨ That doesn’t mean we won’t get there, because we will, but unfortunately for some of us it can take even longer than we initially expected. ~ So if you see someone with a chronic illness, still ill after many years, please don’t assume they aren’t trying to get better. They are trying so damn hard. 🌟 And if you are someone with a chronic illness and you are trying so hard to get better and not getting anywhere, don’t ever give up hope. Keep trying: we will all get there one day. 💙💚 #meawareness #lymeawareness #chronicillnessawareness
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