Hello and welcome to my blog!
My name is Evie, I’m 22 years old, and I suffer from M.E.
My health story started nearly 6 years ago when I contracted glandular fever in 2013 at the age of 16. Although I got glandular fever in February of that year, it wasn’t until 4 months later in June that I knew I had been ill with Glandular fever. At the time, I was in the middle of my GCSE’s and I ended up having to take my exams dressed in my pyjamas at home. I never fully recovered from glandular fever, and over the next two years my health slowly declined.
In November of the following year, when I had just started my final year at school, although I hadn’t yet got a diagnosis of M.E, I knew in my gut that something was seriously wrong; I was struggling to make it through each day and my grades were rapidly dropping. When I dropped out of school, initially the plan was to return and retake the final year, but within a month of leaving I caught a chest infection, and my health went from bad to worse. I finally received my diagnosis of M.E, and then later a few months later fibromyalgia.
Myalgic Encephalomyelitis (M.E) is a severe, acquired illness. Despite an estimated 250,000 people suffering from the condition in the UK there is little investment in understanding the cause of this illness.
Before M.E I led a full and active lifestyle; I was always playing sport and throwing myself into everything life had to offer. Since becoming ill my health has gradually deteriorated over the past six years and I have not left the house since the 29th November, 2016. A very good day for me is having a shower, or having the energy for my parents to wash my hair. My body simple does not produce enough energy.
If you imagine your energy is like a battery charge, each day for a healthy person you would start the day at 100%, whereas mine would start the day with a 10-20% charge. This results in me barely having enough energy to get through the day. Other symptoms I suffers from as a result of M.E. include pain, migraines, brain fog, severe noise and light sensitivity, an inability to regulate body temperature and overwhelming fatigue.
Despite everything, I will forever be grateful for becoming housebound, because I have learnt more about myself and the world in these past few years than I would have in my entire lifetime had I not been ill.
As they say, life is sometimes 10% what happens to you and 90% how you react to it. You may see a girl who is housebound, but I feel like a girl who is incredibly lucky not to be bedbound. You may see a girl who should be angry at her situation and at the doctors who can’t help, but I feel like a girl who can never see the point or purpose in anger. You may see a girl who should be out partying and living life like other 22 year olds, but I feel like a girl who has gained so much more than any 20 something experience could have taught me. You may see a girl who should be unhappy in life, but I feel like a girl who wakes up every day and can’t see a reason why I shouldn’t and can’t be happy 💫❤️
So here I am writing this blog, sharing my experience and tips on simple ways that have helped me cope over these last few years with the help of mindfulness, in the hope that it may help you in some small way or another through whatever journey you may be on.
Note: I will always finish my posts with “Metta”. Metta is a Buddhist concept meaning “loving kindness”, but you don’t have to be a Buddhist to use it. If you’re sending someone Metta, this means you are sending them thoughts of love and kindness.
Metta, E xx